ELA Luxembourg dedicates its resources to the research of leukodystrophies and is currently planning to finance a clinical trial. Lambot explains: "Usually we rely on donations from businesses, which tend to be generous with their donations. However, since the beginning of the health crisis, we have seen a 70 to 80% decline."
A critical situation, not only for ELA Luxembourg, but also for the other numerous humanitarian organisations that have even higher expenses. Lambot conveyed that his team was able to cut rent costs since a volunteer offered to house the organisation.
Although such measures help ELA Luxembourg prevail over the crisis, it will not be possible for them to make a significant amount of progress in that same period.
ELA Luxembourg has a number of important occasions coming up, like the nation-wide Diversity Day on 6 October, or the 5th edition of the MTB initiative on 15 October. Lambot thus used the opportunity to remind donors and volunteers to continue committing to the fight against leukodystrophies.
The association moreover developed an app to help organise donation events in the future: "The application counts the steps of users, 1 cent being donated for each single step accumulated over the course of an event. Naturally, businesses can also decide to set a maximum limit."
The application can also be used by private people on 15 October with the use of the following code: 62882. The step counter will be active from 8 am until 5 pm.
People can moreover use the application to create their own events, for which they will only have to get a new code from ELA Luxembourg. Christophe Lambot hopes that this method may increase both donations and awareness of the disease over time.
Video report in French:
