According to ALAN, a non-profit association supporting people affected by rare diseases, around 30,000 people in Luxembourg are affected.
While 28 February marks the official day, Luxembourg's launch will take place at the Ban de Gasperich water tower on 24 February in the presence of Paulette Lenert, Minister of Health, Lydie Polfer, Mayor of the City of Luxembourg, and Shirley Feider-Rohen, President of the association ALAN - Maladies Rares Luxembourg. The water tower will then be illuminated in pink, blue, purple and green for the duration of the week.
Around 5% of the global population suffers from a rare disease. Most of these are hereditary diseases, and can have a severe impact on daily life. ALAN aims to create an environment that allows these individuals to live an inclusive and high-quality life. The association's services include consultations, awareness-raising in the political and educational sphere, and recreational activities.
More information can be found on ALAN's website.
